Acceptance of these Rules forms part of the Terms and Conditions of Use of Parkinson’s NSW Online Support Groups
When you are using Parkinson’s NSW Online Support Groups your personal information is kept confidential. We will not share your information with any other organisation without your express permission, except where we are required to do so under law.
Age Limit of Sixteen:
You must be aged sixteen or over to participate in a Parkinson’s NSW Online Support Group. Individuals who are under 16 can access support through our InfoLine and counselling service 1800 644 189.
When you first enter a Online Support Group forum, please announce your presence by introducing yourself, just as you would if you had just walked into a physical room. You may like to give your first name, or just be known by the nickname you have created for the forum.
Respect other users:
Open and honest communication is encouraged within the Support Group, but always be aware of how your words may impact on others. At all times, please be patient and kind with other users and try to respect other individuals’ opinions, statements, ideas, and shared story or experiences, even when they may be quite different to your own. Please also be respectful of conversational space and try not to dominate the conversation.
Offer support, not advice:
The Online Support Group is a space where you can provide really valuable support to other people who have experienced similar issues to you. However, we ask you to remember that you are there to provide support, not advice, to those around you. Everyone’s experience with Parkinson’s is unique, and what worked for you will not automatically work for someone else, no matter how similar their experience may sound to you. The most helpful thing you can do for them is to let them know “what worked for me”, and let them (with their care provider) decide for themselves if it might work for them too.
Some behaviours are inappropriate and will not be tolerated in the Online Support Group. Breach of any of the points below will result in your being warned and/or ‘kicked’ from the Online Support Group without further notice.
•You must not use the Online Support Group if you are affected by drugs or alcohol.
• You must not post any statement which you know is false, inaccurate, misleading, defamatory, libellous, or in violation of any law.
•You must not post any statement, ask questions or use language which may be construed as offensive, harassing, obscene, pornographic, profane, threatening, abusive or invasive of a person's privacy. This includes no swear words or abbreviated swear words.
•You must not post any statement that may be construed as discriminatory on the basis of race, gender, sexual orientation, religion or any other form of illegal discrimination.
•If you believe someone else is behaving or posting inappropriately, please let a Administrator know, and they will address the behaviour.
No sharing of personal contact details
Please do not ask for or share personal contact details with others in the Online Support Group, for your own privacy and safety.
No suicide or self-harm talk
Suicidal/self-harm thoughts and feelings are always serious and require urgent and individual attention. If you are having these thoughts or feelings, rather than joining an Online Support Group you should seek immediate help from a 24 hour crisis support service such as:
Lifeline: 13 11 14
Police or ambulance: 000
Consequences of breaching these rules
If a Administrator believes someone has breached the rules for participating, she or he will post a general reminder of the rules to the whole Support Group. If you have breached the rules by engaging in ‘Inappropriate Behaviour’ you will be warned and/or removed from the Online Support Group without further notice. For other lesser breaches of the rules, your posts may be temporarily blocked so that others cannot read them. If you breach the rules again, you may be removed from the Support Group and banned temporarily or even permanently from returning.
If you have any queries, concerns or require further information relating to these Terms and Conditions, you are invited to email the Support Group Coordinator on:
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